Tuesday, July 14, 2015

July 15, 2015: Mid-Term Exam TIme

July 2015 - Mid-Term Exam Time

I haven’t posted for quite a while, since this cancer treatment has settled in like a cross country run.  It’s not a sprint, it’s a marathon.  The process at times has been repetitive and mundane, except for the part where I remind myself that I am in a process of being poisoned enough to kill cancer cells in my bone marrow while not being poisoned enough to kill off the rest of me! 

I had a CAT scan after my fifth of eighth scheduled cycle of drug treatments back in March 2015, and the results, as my physician said, showed “dramatic improvement.”  That was definitely good news, and, as a fellow cancer-survivor acquaintance of mine said, “Cancer physicians are not in the habit of using hyperbole or exaggerations; they don’t want to give you anything but reality regarding a cancer diagnosis.”

The results were positive enough, that my physician cancelled the eighth of my scheduled eight monthly cycles of treatments, receiving the last full dose of drugs the last week of March.

Since then, the plan has been to let the drugs run their course, and then in the summer, run a battery of tests to see exactly where I am at in the recovery process, what I call my Mid-Term Exam, and tomorrow, June 15, 2015 is the big day.  I’m getting a CAT scan, a PET scan and some blood draws.  No fun, but as I often tell people, it’s for a good cause: me!

Barring some unexpected outcomes, the next phase of treatment for me is a two-year routine of targeted drug treatments, using a drug that strictly goes after lymphoma cells.  The treatment cycle will be one day a week for four consecutive weeks, and then off for two months, and then another four-week cycle of treatments and so-on. 

I’ll be interested to see what the side effects of the targeted lymphoma drugs will be without the companion chemotherapy drugs which I’ve had flowing through me since October 2014.  The side effects so far have been miserable, but not terrible, especially when I compare my experience to what others who have suffered much worse under the influence of chemotherapy.

I’ve been blessed thus far, and hope I remain in God’s good graces.  2015 is a good year to have the disease I have.

Random thoughts:

It makes me feel empathetically sad whenever I hear about a pediatric cancer patient, especially when I hear they are getting “aggressive” chemotherapy.  I feel I’ve had “standard” chemotherapy, if there is such a thing, and it cause for some miserable days.

My taste buds got messed up, and three months past my most recent chemo blast I I still find some foods which should taste good to be the opposite, or tasteless.

I’ve received a lot of compliments from friend and co-workers, which help keep me going and staying positive.  Who doesn’t like to be told “You look good.”? Parenthetically, they may be thinking, “compared to how bad you looked some says at the height of your treatments,” but hey, I’ll take it.

People have asked me what getting chemotherapy drugs is like.  I feel my best description is, for me anyway, that it feels like having the flu, only without the joint pain and the fever.  The insides just feel unsettled.  I’ve had hot flashes and chills.  I’ve burped too much at both ends of the digestive system.  My energy wanes, and it seems if I overdo it one day, I pay for it the next day.  If I feel good today, I think I should feel a little better tomorrow, charting my feelings like a linear graph.  Instead, a graph of my feelings would look more like the stock market, with inexplicable ups and downs.

So, that’s where I’m at.  I still have a wife and children who love me , I have reliable health insurance, and I have a firm faith in Jesus Christ to sustain me.  And I have friends, like you.  Thanks for reading, and for your kind words.


-          Robert/Bob/Rob/Opa/Brother Tegeder/Hey You

Wednesday, February 4, 2015

I Thought My Taste Buds Were Bad Before.....

As I remind myself and others, this treatment program is not a sprint, it's a marathon.  Having passed the halfway point in my treatment schedule, I feel like I'm on a distance run at the point where you're just putting one foot in front of the other.  I find myself looking forward the finish line in April, while dreading the remaining three treatment cycles.

I'm getting a cumulative effect, where the previous does hasn't completely ended its effects, when another load comes in.  The side effects seem to hit faster and harder in this fifth cycle.  My voice is already hoarse. (It doesn't hurt or feel like a sore throat, but it sounds like it.)  My taste buds are really shot this time.  Here's what tastes normal, so far in my informal poll:

Potatoes
Corn
Rice
Some hard candies

and,...that's about it.  Just about all sweets, meats, fruits and vegetables either taste like nothing, taste off, or just plain taste bad.

Oh well, it beats the alternative, which is not treating the disease.

In the meantime, I'll look forward to a spring/summer day when I get a clear bill of health and my taste buds return.  That will be a great day!

I the meantime, excuse me while I go have a snack on...uh...nothing.